Awareness * Advocacy * Research

Identifying Mast Cell Activation Syndrome

MCAS: definition and classification.
http://www.ncbi.nlm.nih.gov/pubmed/23179866
http://www.ncbi.nlm.nih.gov/pubmed/23409940
http://www.mastcellaware.com/about.html
http://www.mastocytosis.ca/masto.html
http://www.thepatientceliac.com/2014/01/04/mast-cell-activation-syndrome-madness/

Diagnostics and Therapies

Mast cell activation disease: a concise practical guide for diagnostic workup and therapeutic options
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3069946/#!po=22.0000

The presentation, diagnosis and treatment of MCAS
http://www.allergysa.org/journals/August2014/ThePresentation.pdf

Co-existing Conditions

A Tale of Two Syndromes – POTS and MCAS
http://www.dysautonomiainternational.org/blog/wordpress/a-tale-of-two-syndromes-pots-and-mcas/

Hyperadrenergic Postural Tachycardia Syndrome in Mast Cell Activation Disorders
http://hyper.ahajournals.org/content/45/3/385.long
http://hyper.ahajournals.org/content/45/3/385/T2.expansion.html
http://hyper.ahajournals.org/content/45/3/385/T1.expansion.html

MCAS  and Celiac
http://www.thepatientceliac.com/2014/01/04/mast-cell-activation-syndrome-madness/

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Nuggets of Wisdom

Yes, there is such a thing as having an allergic type reaction to temperatures. This is defined as a physical urticaria. Other physical urticarias include Solar, Aquagenic, Pressure, Vibration and Exercise.

Most reactions are pseudo-allergic. By definition, an allergy involves inhaling or consuming an allergen. Physical urticarias have no known allergen. Despite the terminology and medical definitions, systemic reactions can be life threatening.

Cold has an arbitrary definition based on an individual feeling. For a person with a cold urticaria, cold can be defined as any temperature cooler than their own body temperature.

You do not have to be cold to have a reaction to the cold; contact with cold can trigger a reaction.

You can have an allergic type reaction to both cold and heat simultaneously.

Most reactions considered anaphylactic are really anaphylactoid by definition.

Moving to a warmer climate as a treatment for Cold Urticaria is a myth. Warmer climates present their own issues for those with Cold Urticaria.

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