Awareness * Advocacy * Research

Mastocytosis is a disorder that can occur in both children and adults. It is caused by the presence of too many mast cells in the body. Mast cells are found in skin, lymph nodes, internal organs (such as the liver and spleen) and the linings of the lung, stomach, and intestine.

See Video 1, See Video 2, See Video 3

Each video features four renowned doctors in the field of mast cell research: Dr. C. Akin, Dr. M. Castells, Dr. T.C. Theoharides, and Dr. N.J. Greenberger. It also features testimonies from patients suffering from mastocytosis or mast cell related diseases.

Link to external websites for further research:
Systemic Mastocytosis Symptoms, Diagnosis, Treatment
Mastocytosis – National Organization for Rare Disorders

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Nuggets of Wisdom

Yes, there is such a thing as having an allergic type reaction to temperatures. This is defined as a physical urticaria. Other physical urticarias include Solar, Aquagenic, Pressure, Vibration and Exercise.

Most reactions are pseudo-allergic. By definition, an allergy involves inhaling or consuming an allergen. Physical urticarias have no known allergen. Despite the terminology and medical definitions, systemic reactions can be life threatening.

Cold has an arbitrary definition based on an individual feeling. For a person with a cold urticaria, cold can be defined as any temperature cooler than their own body temperature.

You do not have to be cold to have a reaction to the cold; contact with cold can trigger a reaction.

You can have an allergic type reaction to both cold and heat simultaneously.

Most reactions considered anaphylactic are really anaphylactoid by definition.

Moving to a warmer climate as a treatment for Cold Urticaria is a myth. Warmer climates present their own issues for those with Cold Urticaria.

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