Awareness * Advocacy * Research

Emergency Kits for Cold Urticaria

Emergency Kits for Cold Urticaria

 Things to carry with you in the event of an emergency on the road or out and about.

1.   Epinephrine Autoinjector

2.   Medical Bracelet – We use a USB bracelet that self installs on any computer.

3.  Information Sheet – We put all her diagnoses, meds, doctor names and contact numbers, allergies, special instructions such as warming all IV fluids, prior surgeries and other pertinent information for an Emergency trip to the hospital.

4.  A coat – this goes everywhere with us.  We use a hoodie during the summer.

5. Hat, scarf and gloves goes everywhere during the winter.

6. A blanket – This stays in the vehicle for use while out and about.  We use it at the doctor’s office often where it is usually cold.

7.  Hot Hands – This is a brand of hand warmers that when exposed to air gets really hot and lasts for ten hours.

8.  Extra meds – keep labeled bottles in your purse or vehicle for those emergency needs.

9. Umbrella – Seems obvious, but easy to forget.

10. A change of clothes if there is any chance of getting wet.

If you allow your child the opportunity to swim, one parent on the FB group Parents of Children with Cold Urticaria recommended heating blankets in the drier and putting them in an insulated tote.  The towels stay warm for a long time.

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Nuggets of Wisdom

Yes, there is such a thing as having an allergic type reaction to temperatures. This is defined as a physical urticaria. Other physical urticarias include Solar, Aquagenic, Pressure, Vibration and Exercise.

Most reactions are pseudo-allergic. By definition, an allergy involves inhaling or consuming an allergen. Physical urticarias have no known allergen. Despite the terminology and medical definitions, systemic reactions can be life threatening.

Cold has an arbitrary definition based on an individual feeling. For a person with a cold urticaria, cold can be defined as any temperature cooler than their own body temperature.

You do not have to be cold to have a reaction to the cold; contact with cold can trigger a reaction.

You can have an allergic type reaction to both cold and heat simultaneously.

Most reactions considered anaphylactic are really anaphylactoid by definition.

Moving to a warmer climate as a treatment for Cold Urticaria is a myth. Warmer climates present their own issues for those with Cold Urticaria.

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